Brooke Eby was 33 years old when a doctor told her she had amyotrophic lateral sclerosis. She spent two months in bed, crying and eating chocolate. Then she went to a friend’s wedding, gave people rides on her walker across the dance floor, and decided that if ALS was going to take everything from her, she would make sure the world watched what that looked like.
Eby died on October 1, 2026, at the age of 37. The ALS Network announced her death, calling her an “extraordinary advocate, storyteller, community builder and friend whose honesty, humor and determination changed how countless people understood ALS.”
In four years, Eby built a social media following of more than 500,000 people under the handle @LimpBroozkit. She founded ALStogether, a nonprofit connecting people living with ALS. She raised more than $1 million for ALS research. She launched an adaptive clothing line. She continued working at Salesforce. And she did all of it while her body progressively lost the ability to walk, then stand, then breathe without assistance.
This is the full story of who Brooke Eby was and what she built before ALS took her.
The Diagnosis That Changed Everything
The first sign appeared in 2018. Eby was rushing to a work conference from her Salesforce office in New York City when she noticed her left foot was slapping against the ground. She assumed it was a workout injury.
Her sister, who is a doctor, identified it as drop foot. Eby sought medical attention, but doctors were unable to determine the cause after running extensive tests. For several years, the left foot was her only symptom, and the mystery persisted.
“I think the combination of my slower progression and the fact that I am younger, a woman, I think all led us to more hope that it wouldn’t be ALS,” Eby later told the ALS Association. “But ultimately ALS stopped hiding.”
In early 2022, her right foot began dropping as well. A new EMG performed by Dr. Ezra Cohen identified the condition as a motor neuron disease. She was referred to Dr. Sarah Berth at the Johns Hopkins ALS Clinic, who confirmed the diagnosis in March 2022.
Eby was 33. She had graduated from Lehigh University 12 years earlier. She was working a job she loved. At the time of her diagnosis, she did not know much about ALS beyond the Ice Bucket Challenge.
She would soon learn that ALS progressively destroys the nerve cells that control voluntary movement. Most people with the disease live two to five years after diagnosis. There is no cure.
The Turning Point at a Friend’s Wedding
After the diagnosis, Eby spent two months in shock. She described the period as pure survival.
The turning point came at the wedding of her close friend Jessica Lubitz, a fellow Lehigh University classmate she had met on her first day at college. Eby was a bridesmaid. She needed a walker to get around and felt embarrassed about it.
She considered leaving early. But her friends convinced her to stay. Within a couple of hours, the bride was doing the limbo under Eby’s walker, and Eby was giving people rides across the dance floor. The room was laughing with her, not around her.
“Everyone was a lot more comfortable with my situation when I was laughing,” Eby later wrote in a personal essay for People magazine, “and that came back around to make me feel more comfortable too.”
That moment became the template for everything that followed. If humor could defuse the discomfort of ALS in a wedding reception, it could defuse it on the internet.
How Brooke Eby Built @LimpBroozkit Into an ALS Platform
Shortly after the wedding, Eby started writing down the funny moments of her new reality. She created accounts on TikTok and Instagram under the handle “LimpBroozkit,” a play on her name sandwiched between the 1990s band Limp Bizkit.
Her first TikTok introduced viewers to a young woman with a terminal illness who was determined to make them laugh before asking them to confront uncomfortable truths. One early video used the “Get Ready With Me” format: “Get ready with me while I tell you how I got a death sentence before my 30th birthday.”
The content worked because it refused to be what people expected. Eby talked about the realities of mobility loss, medical appointments, and progression, but she did it with timing and self-awareness that made people stay rather than scroll past. She covered the challenges of dating with a terminal illness. She reviewed adaptive tools. She told her audience she would not wish ALS on anyone, but wished people “could have it just for a day” to understand.
Her father, Clifford Eby, produced a parody video series called the “ALSCARS,” styled after the Academy Awards. Her mother co-starred in videos reviewing adaptive clothing. The family’s participation made the content feel lived-in and warm.
By 2025, Eby had more than 400,000 followers across platforms. By the time of her death in 2026, the number had grown past 500,000. The New York Times profiled her in January 2025 under the headline: “When Your Terminal Illness Makes You a TikTok Star.”
She was clear about her intentions. “I’m not doing this for any reason other than to share my story and hope that it gets people connected to ALS,” she said.
ALStogether, Fundraising, and the Work Beyond Social Media
Eby’s advocacy extended well beyond her own accounts. She founded ALStogether, a nonprofit designed to serve as a resource hub for people living with ALS. The community connected patients with experts, caregivers, providers, organizations, and other people with the disease. It grew to more than 1,200 members and functioned as what Eby called “a virtual headquarters for the ALS community.”
Through her public appeals, social media campaigns, and the support of her Salesforce colleagues, Eby helped raise more than $1 million for ALS research. At one point, she addressed 70,000 people at a Salesforce company kickoff in California. Marc Benioff, the CEO of Salesforce, became personally involved in amplifying her work.
In June 2023, Eby threw the ceremonial first pitch at a Baltimore Orioles game on ALS Awareness Night. She also did the same at a Washington Nationals game. She used her social media platform to advocate publicly for promising drug treatments under review by the FDA.
She collaborated with the adaptive clothing company Silverts to create Brooke Eby x Silverts, a clothing line designed for people with disabilities. The line was born from her own frustration at finding stylish options after her diagnosis. A portion of the proceeds benefited Team Gleason, the organization supporting people living with ALS.
In June 2026, just months before her death, the ALS Network honored Eby with its Dean and Kathleen Rasmussen Advocate of the Year Award. In accepting it, she said: “I’m so grateful for this award because it tells me I’m helping in my own weird way.”
Brooke Eby’s Life Before ALS
Before the diagnosis defined her public identity, Eby had a full professional and personal life that had nothing to do with advocacy.
She was born on December 22, 1988, in Potomac, Maryland, an affluent suburb of Washington, D.C. She grew up in a close family. Her father, Clifford Eby, is a Lehigh University alum from the Class of 1973. Her brother, Christopher Eby, graduated from Lehigh in 2005. Her sister, Sarah, became a doctor.
Eby attended Churchill High School in Potomac before enrolling at Lehigh University, where she graduated in 2010 with a degree in business systems information. As a teenager, she appeared in several television commercials and had a small role in the 2003 film “Holes.”
After college, Eby built a career in the technology industry. She worked in financial technology roles in New York City and San Francisco before joining Salesforce in 2016 as a business development manager. She was later promoted to principal in partnerships.
When ALS entered her life, Eby kept working at Salesforce remotely. The company provided accommodations as her needs changed, including flying her to conferences on the company’s private jet. Her continued employment was not just financial. It was part of her identity and her refusal to let the disease define every dimension of her life.
As her condition progressed, Eby moved from walking aids to a wheelchair and eventually returned to her parents’ home in Potomac for additional support. Her family modified the house to accommodate her needs.
The Final Months and the Tributes That Followed
In June 2025, Eby updated her followers that her breathing capacity had steeply declined over the previous six months. ALS had been progressing, as it always does. By the time of her death, the disease had affected her mobility, breathing, speech, and other physical abilities.
Eby died on October 1, 2026. The ALS Network announced her passing, and Salesforce CEO Marc Benioff confirmed it in a post on X.
Benioff called Eby “an amazing warrior with an attitude so positive it could melt a glacier.” He said his thoughts were with her family.
Sheri Strahl, president and CEO of the ALS Network, said: “Brooke changed the way people see ALS, but she also changed the way people living with ALS find and support one another.”
The ALS Network’s statement ended with a line that captured the promise Eby had made to her community: “Brooke once promised she wasn’t getting quiet.”
She kept that promise for four years. ALStogether, the community she built, is expected to carry her vision forward.
Quick-Reference Profile
| Detail | Information |
|---|---|
| Full Name | Brooke Eby |
| Born | December 22, 1988, Potomac, Maryland |
| Died | October 1, 2026 (age 37) |
| Cause of Death | Complications of ALS |
| Education | Churchill High School; Lehigh University (Class of 2010) |
| Degree | Business Systems Information |
| Employer | Salesforce (2016 to 2026) |
| ALS Diagnosis | March 2022, at age 33 |
| First Symptoms | 2018 (left foot drop) |
| Social Media | @LimpBroozkit (500,000+ followers) |
| Nonprofit | ALStogether (1,200+ members) |
| Clothing Line | Brooke Eby x Silverts (adaptive clothing) |
| Fundraising | $1 million+ raised for ALS research |
| Award | ALS Network Advocate of the Year (June 2026) |
| Family | Father Clifford Eby, brother Christopher Eby, sister Sarah Eby |
FAQs
Who was Brooke Eby?
Brooke Eby was an ALS advocate, social media creator, and Salesforce employee from Potomac, Maryland. After being diagnosed with ALS at age 33 in March 2022, she built a following of more than 500,000 people under the handle @LimpBroozkit by documenting her life with the disease through humor and candor. She founded ALStogether, raised more than $1 million for ALS research, and launched an adaptive clothing line.
How did Brooke Eby die?
Eby died on October 1, 2026, at the age of 37, from complications of ALS. She had lived with the disease for four years following her March 2022 diagnosis. The ALS Network announced her death and paid tribute to her advocacy.
What was ALStogether?
ALStogether is a nonprofit founded by Brooke Eby that serves as a resource hub for people living with ALS. The community connects patients with experts, caregivers, providers, and other people with the disease. It grew to more than 1,200 members and was designed to fill gaps in the ALS support landscape.
When was Brooke Eby diagnosed with ALS?
Eby was diagnosed in March 2022 at age 33. Her symptoms first appeared in 2018 when she noticed her left foot slapping against the ground. After four years of testing and unexplained symptoms, she received the official diagnosis from doctors at Johns Hopkins.
What was Brooke Eby’s social media handle?
Eby posted under the handle @LimpBroozkit on both TikTok and Instagram. The name combined part of her own name with a play on the 1990s band Limp Bizkit. She had more than 500,000 followers across both platforms at the time of her death.
Did Brooke Eby continue working after her ALS diagnosis?
Yes. Eby continued working at Salesforce, where she had been employed since 2016. She worked remotely as her condition progressed and used her professional platform to advocate for ALS awareness. Salesforce CEO Marc Benioff personally acknowledged her contributions.
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